LONG-TERM SERVICES & SUPPORTS

What are long-term services and supports?

As a result of aging, acute or chronic illness or disability, some people require Long-term Services and Supports (LTSS) to complete tasks and live full lives day-to-day. For example, someone may require home health aide or personal care services to prepare meals, eat, dress, bathe and/or manage their medication. Others may require transportation or supported employment services. LTSS needs are unique to each individual and can be needed for varying lengths of time—weeks, months, or long-term.

Photo Courtesy of MS Society

Photo Courtesy of MS Society

Stories

"I have purchased good long term care, but the cost rose $1200 this year. Soon I won't be able to afford it. There must be a better way."

 - J. Lindgren from Florida

"Long term rehabilitation services are as critical as life sustaining medications for Corey. She is recovering from a severe traumatic brain injury. Without coverage for long-term services and support, she will never have the opportunity to regain function to live independently."

 - M. Beattie from Pennsylvania

"My son has severe autism; cannot speak, sign, or write. He has very few self-help skills and severe behaviors. He will never be able to support himself in any way. He truly represents the most vulnerable of society -- those in which there really needs to be something in place. We will do all we can for as long as we can, but we do need help desperately."

 - K. Rhodomoyer from Pennsylvania

Programs that provide LTSS

LTSS are provided by unpaid caregivers (primarily relatives and friends) and paid providers. Private long-term care insurance is available but limited and expensive and Medicare covers very little LTSS. As such, Medicaid is currently the primary payer for LTSS.

Resources and tools

The following resource links will direct you to the web sites of the listed organizations: